Caregiving

Alzheimer’s & Dementia Caregiver Center

Alzheimer’s Association

“Caregivers”

On MedlinePlus, National Library of Medicine
The “Related Health Topics” in the right sidebar may also be helpful.

Caregiver Action Network

Information & online support.

Caring from a Distance

For long-distance caregivers.

CaringBridge

Easily create an ad-free website for sharing information & support during a loved one’s illness. Journal entries by the patient &/or caregivers keep others updated; friends & distant family members can offer help and encouragement.

Family Caregiver Alliance

National Alliance for Caregiving

Extensive list of organizations with information & services for caregivers.

Share the Care

Tools and tips for organizing a group to provide meals, transportation, and/or care.

In-home assistance & care facilities

ARCH National Respite Network and Resource Center

Information about respite care, including a respite care locator.

CANHR | California Advocates for Nursing Home Reform

Many of the excellent resources for California consumers seeking information on the following topics are also available in Spanish, Chinese, and Japanese –

  • skilled nursing facilities
  • residential care facilities
  • elder abuse or neglect.

Eldercare Locator

U.S. Administration on Aging

“In-Home Support Services (IHSS) Program”

California Department of Social Services
If you qualify for Medi-Cal and need assistance to continue living safely in your home, IHSS will pay someone to help you with personal care and housekeeping. Your paid assistant can be a family member.

Nursing Home Compare

Centers for Medicare & Medicaid Services

Disabilities

“Assistive Devices”

On MedlinePlus.gov, from the National Library of Medicine

“Benefits for People with Disabilities”

U.S. Social Security Administration

“Camps & Retreats”

NeedyMeds
Locate camps for adults & kids with specific medical conditions or social, emotional, psychological, or educational challenges. Many are free or offer financial aid.

Center for Parent Information and Resources

For parents of children with disabilities.

“Disabilities”

On MedlinePlus, National Library of Medicine
The “Related Health Topics” in the right sidebar may also be helpful.

Disability Resources

U.S. Department of Labor
A guide to information resources and services provided by many different federal agencies.

Disability Benefits 101

World Institute on Disability & other organizations
Information & tools regarding health coverage, benefit, and employment programs to help disabled workers & their employers in California and several other states.

ILRU | Independent Living Research Utilization

Information to help people with disabilities live independently in their communities. The most helpful sections of the site may be Resources and Publications. Use the “Directory of Centers for Independent Living (CILs) & Associations” to find your local CIL.

“Living with Paralysis”

[NOTE: Relevant to many disabilities.]
Christopher & Dana Reeve Foundation
Wheelchairs, employment & financial planning, travel, & other concerns are covered.

“Mobility Aids”

On MedlinePlus.gov, from the National Library of Medicine
Canes, crutches, wheelchairs, & transportation.

NCHPAD | National Center on Health, Physical Activity and Disability

Exercise and fitness for adults and children who have chronic health conditions or physical disabilities. One feature, “14 Weeks to a Healthier You,” offers personalized fitness guidance. Other helpful sections of the site are “Articles” and “Directories.”  (Locate specific content of interest within an article via its table of contents, located on the right.) Content is available for laypersons, health care & fitness professionals, and educators.

PHP | Parents Helping Parent

For families with special needs children, including adult children. Support groups, lectures, workshops, and an extensive library are offered at the nonprofit’s San Jose, CA headquarters.

Silicon Valley Independent Living Center

A nonprofit, non-residential organization providing tools & resources to enable people with disabilities to live interdependently.